Palliative Care Publications - Institute for Cancer Outcomes and Survivorship

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Johnston, EE, Alvarez, E, Saynina, O, Sanders, L, Bhatia, S, Chamberlain, L. Patterns of End-of-Life Care Intensity for Adolescents and Young Adults with Cancer: A Population Based Study in California. Journal of Oncology Practice. 2017, 123(13): 48-54.

Johnston, EE, Alvarez, E, Saynina, O, Sanders, L, Bhatia, S, Chamberlain, L. Disparities in the Intensity of End-of-Life Care for Children with Cancer. Pediatrics. 2017, 140(4).

Johnston, EE, Rosenberg A, Kamal, A. Pediatric Specific End-of-Life Care Quality Measures: An Unmet Need of a Vulnerable Population. Journal of Oncology Practice. 2017, 13(10), e874-3880.

Johnston, EE, Alvarez, E, Saynina, O, Sanders, L, Bhatia, S, Chamberlain, L. Inpatient Utilization and Disparities: The Last Year of Life of Adolescent and Young Adult Oncology Patients in California. Cancer. 2018, 124(8): 1819-1827.

Johnston, EE, Muffly, L, Saynina, O, Sanders, L, Bhatia, S, Chamberlain, L. End-of-Life Care Intensity in Allogeneic Hematopoietic Cell Transplant Recipients: A Population Level Analysis. Journal of Clinical Oncology. 2018, 36(30) 3023-3029.

Johnston, EE, Bogetz, J, Saynina, O, Chamberlain, L, Bhatia, S, Sanders, L. Disparities in Intensity of End-of-Life Care for Children with Complex Chronic Conditions. Pediatrics. 2019; 143(5) e20182228.

Dionne-Odon, J, Curie, E, Johnston, EE, Rosenberg. Supporting family caregivers of adult and pediatric persons with leukemia. Seminars in Nursing Oncology. 2019, 35(6) 150954.

Johnston, EE, Adesina, OO, Alvarez, E, Amato, H, Paulukonis, S, Chamberlain, L, Bhatia, S. Acute Care Utilization at End-of-Life in Sickle Cell Disease: Highlighting the Need for a Palliative Approach. Journal of Palliative Medicine. 2020, 23(1) 24-32.

Johnston, EE, Martinez, I, Currie, E, Brock, K, Wolfe, J. Hospital or Home? Where Should Children with Cancer Die and How Do we Make that a Reality? Journal of Pain and Symptom Management. 2020, 60(1): 106-115.

Johnston, EE, Rosenberg A. Better Understanding the Importance of Palliative Care for Pediatric Patients. JAMA Oncology. 2020, 6(6): 817-818.

Johnston, EE, Molina, J, Martinez, I, Dionne-Odom, N, Currie, E, Crowl, T, Butterworth, L, Chamberlain, L, Bhatia, S, Rosenberg, A. Bereaved Parents’ Perspectives on End-of-Life Care for Children with Cancer: Implications for Quality Markers. Cancer. 2020, 126(14): 332-3359.

Johnston, EE, Currie, E, Chen, Y, Kent, E, Ornstein, K, Bhatia, S, Dionne-Odom, JN, Rosenberg, A. Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children. Journal of Hospice and Palliative Nursing. 2020, 22(6):456-464.

Martinez, I, Hoppman, A, Perna, S, Wolfe, J, Aye, J, Byrd, P, Johnston, EE. To Disclose or Not To Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure. Journal of Hospice and Palliative Medicine. 2021, 61(1):211-215.

Johnston, EE, Martinez, I, Wolfe, J, Asch, S. Quality Measures for End-of-Life Care for Children with Cancer: A Modified Delphi Approach. Cancer. 2021, 127(14): 2571-2578.

Feudtner, C, Nye, R, Hill, D, Hall, M, Hinds, P, Johnston, EE, Friebert, S, Hays, R, Kang, T, Wolfe, J. Poly-Symptomatology in Pediatric Palliative Care Patients Based on Parent-Reported Data. JAMA Network Open. 2021, 4(8):e2119730.

Boyden J, Hill D, Nye R, Bona K, Johnston EE, Hinds P, Friebert S, Kang TI, Hays R, Hall M, Wolfe J, Feudtner C, for the PPCRN SHARE Project Group. Pediatric palliative care parents’ distress, financial difficulty, and child symptoms. J Pain Symptom Manage. 2021, e-publication ahead of print.

Johnston, EE, Davis, E, Bhatia, S, Kenzik. Location of Death and Hospice Use in Children Based on Insurance. Pediatric Blood and Cancer. 2021, e-publication ahead of print.

Davis, ES, Martinez, I, Hurst, G, Bhatia, S, Johnston, EE. Early palliative care is associated with less intense care in children dying with cancer in Alabama. Cancer. 2022, 128(2): 391-400.

Wimberly, C, Towry, L, Johnston, EE, Walsh KM. SARS-CoV-2 vaccine acceptability among caregivers of childhood cancer survivors. Pediatric Blood and Cancer. 2021, e-publication ahead of print.