With the plethora of large datasets now available, it can often be difficult to figure out which one is the best for your research purpose. To help investigators sidestep obstacles, benefit from the experience and wisdom of fellow investigators, and gain an inside track to using data at scale, CCTS Informatics put together the Data2Discovery Gateway Special Interest Groups to highlight several enclaves. Read below for highlights, who to contact for access and questions, as well as a link to an event recording where you can hear successful use cases for each data enclave.Previous Presentations:
All of Us Workbench
Part of the All of Us Research Hub, which stores health data from a diverse group of participants from across the United States, the All of Us Workbench is a cloud-based platform where researchers can access and analyze All of Us data, including clinical phenotype, wearable data, whole genome sequences, genotypes and more!
For access and/or questions:
Atlanta Research Data Center (ARDC)
Located at the Federal Reserve Bank of Atlanta, the Atlanta Research Data Center (ARDC) is a partnership between the US Census Bureau and member institutions that include Auburn University, Clemson University, Emory University, the Federal Reserve Bank of Atlanta, the Georgia Institute of Technology, Georgia State University, Tulane University, the University of Alabama at Birmingham, the University of Georgia, the University of South Carolina, the University of Tennessee, and Vanderbilt University.
For access and/or questions:
Informatics for Integrating Biology and the Bedside (i2b2)
i2b2 (Informatics for Integrating Biology and the Bedside) is a vital tool for researchers, offering access to a health information repository representing over 9 billion facts on over 1 million patients. It supports self-directed and analyst-facilitated strategies in cohort identification, study feasibility assessment, participant recruitment, and data analysis, while providing downloadable data sets, regular training, and expert one-on-one assistance for efficient and effective research facilitation.
For access and/or questions:
National COVID Cohort Collaborative
The National COVID Cohort Collaborative (N3C)* has created a large, centralized data resource available to the research community to study COVID-19 at a scale and statistical power not possible within any single institution. Join us to hear N3C success stories from across the CCTS Partner Network and learn from your peers how you can jump start your own project.
*Please note, N3C is now evolving to the National Clinical Cohort Collaborative to support a broader array of research questions. Stay tuned for more details.
For access and/or questions:
NCATS Translator
The NCATS Translator platform has been designed as an exploration tool integrating trusted data sources, which aids researchers in discovering novel connections representing biomedical knowledge. The alpha release of Translator allows the user to explore relationships between chemicals/drugs and either diseases or genes.
For access and/or questions:
OneFL+ (PCOREnet CRN)
OneFlorida+ Clinical Research Network—part of the Patient-Centered Outcomes Research Institute (PCORI)-funded national clinical data research network (PCORnet)—assembles health data, research expertise and patient insights to drive clinical discoveries that stand to improve health outcomes.
For access and/or questions:
TriNetX Research Network
TriNetX is a global health research network that enhances collaboration by connecting clinical investigators to extensive patient data. This real-world data network represents 70 billion clinical observations on 250 million patients from over 120 institutions worldwide.
For access and/or questions: